Tag Archives: Long Covid and ME/CFS

Remembering Retha

On Sunday 12th June, Mlindeni and I went to visit Retha for the last time. As Sampson drove us along the coast for an hour and a half to her friend’s flat in Strand, I lay in the back of … Continue reading

Posted in 00 M.E., 30 Back in SA | Tagged , , , , | Leave a comment

#LonghaulersUnite 3: Spotlighting Staminism

This one’s for the MEeps and the LoCos Before you can tackle something, you have to name it. Before sexism and racism were acknowledged as concepts, addressing these issues on an institutional scale was practically impossible. Witness the emergence into … Continue reading

Posted in 00 M.E. | Tagged , , , , , , , , , , , , | 1 Comment

A Pause for Sophia (Sick Consciousness part 1)

To mark Severe ME Awareness Day 2021, 30 years after I first fell victim to post-viral ‘fatigue’, and 3 years since I first vowed to do it, I finally got strong enough to get a Pause tattoo. In my August … Continue reading

Posted in 00 M.E. | Tagged , , , , , , , , , , , , , , , | 4 Comments

#LonghaulersUnite 2: Chronic COVID Time Bomb Ticking

COVID-19 is not simply a binary threat of life or death: the third outcome is a spectrum of post-viral symptoms seriously affecting even young survivors’ abilities to work, study and parent. A year ago, I wrote about how the growing … Continue reading

Posted in 00 M.E. | Tagged , , , , , , , | 3 Comments

#MillionsMore?

On the eve of ME Awareness week and the annual May 12th #MillionsMissing campaign, I’m interrupting the Africa Clockwise story for a moment to update you about the risk of #MillionsMore. Last July, in the blog #LonghaulersUnite, I warned that … Continue reading

Posted in 30 Back in SA | Tagged , , , , | 1 Comment

Back on the Tightrope

Could there be a silver lining to the hearse-black world-covering cloud of COVID-19? Could the fact that more than 10% of infected people go on to develop long term complications unlock vital funds that will finally enable groundbreaking research into … Continue reading

Posted in 30 Back in SA | Tagged , , , | 4 Comments